NewDelhi: Narendra Modi Government has come in support for one and half year old Muhammed from Mattool in Kannur, who is diagnosed with a rare disease called Spinal Muscular Atrophy.
Finance Minister Nirmala Sitaraman said that the import duty and GST for Muhammed’s medicine is waived off, in response to the question raised by Loksabha M P, E.T Muhammed Basheer. The medicine costs nearly 18 crore rupees including import duty and GST. Because of the huge cost for the medicine, E T Muhammed Basheer has approached Finance Minister Nirmala Sitaraman and requested to waive off import duty and GST.
The doctors treating Muhammed has informed that on August 6th, Zolgensma, the medicines for treating children diagnosed with SMA disease will arrive in Kerala. If the medicine is not given immediately, nerves, muscles and lastly bones will be affected. The medicine has to be given within two years.
Adeno related virus vector based gene therapy is used for the treatment. Norvatris in USA is the developer of Zolgensma. Because of the research for this medicine, the cost also became high.